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" Biobanks : "
[edited by] Herbert Gottweis & Alan Petersen.
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BL
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| Record Number
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1002722
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b757092
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| Title & Author
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Biobanks : : governance in comparative perspective /\ [edited by] Herbert Gottweis Alan Petersen.
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| Publication Statement
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Abingdon, Oxon ;New York, NY :: Routledge,, 2008.
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| Page. NO
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1 online resource (xii, 234 pages)
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| ISBN
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0203927990
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: 1134090269
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: 9780203927991
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: 9781134090266
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0415427371
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041542738X
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9780415427371
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9780415427388
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| Bibliographies/Indexes
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Includes bibliographical references and index.
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| Contents
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Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen -- Biobanks in action : new strategies in the governance of life / Herbert Gottweis -- The rise and fall of a biobank : the case of Iceland / Gísli Pálsson -- Estonia : ups and downs of a biobank project / Rain Eensaar -- Patient organizations as the (un)usual suspects : the biobanking activities of the Association française contre les myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer -- "This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider -- Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher -- Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis -- UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen -- Biobanks and the biopolitics of inclusion and representation / Richard Tutton -- The informed consenters : governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken -- Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen -- Governing through biobanks : research populations in Israel / Barbara Prainsack.
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Biobanks-- Government policy, Cross-cultural studies.
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Biobanks-- Political aspects, Cross-cultural studies.
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Human genetics-- Databases-- Moral and ethical aspects, Cross-cultural studies.
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BUSINESS ECONOMICS-- Business Ethics.
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DNA data banks.
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Political planning.
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Databases, Genetic-- legislation jurisprudence.
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Confidentiality-- legislation jurisprudence.
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Databases, Genetic-- ethics.
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Public Policy.
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| Dewey Classification
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174/.957
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| LC Classification
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QH441.2.B43 2008eb
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| NLM classification
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QU 33.1B615 2008
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| Added Entry
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Gottweis, Herbert,1958-
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Petersen, Alan R.,1953-
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