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" The Official Patient's Sourcebook on Hallervorden-Spatz Disease. "
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BL
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| Record Number
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1016200
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| Doc. No
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b770570
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| Title & Author
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The Official Patient's Sourcebook on Hallervorden-Spatz Disease.
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| Publication Statement
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ICON Group, 2002.
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| Page. NO
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1 online resource (128)
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| ISBN
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0597830061
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: 9780597830068
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| Contents
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Cover -- TOC36;Contents -- Introduction -- Overview -- Organization -- Scope -- Moving Forward -- PART I58; THE ESSENTIALS -- CH36;Chapter 146; The Essentials on Hallervorden45;Spatz Disease58; Guidelines -- Overview -- What Is Hallervorden45;Spatz Disease63; -- Is There Any Treatment63; -- What Is the Prognosis63; -- What Research Is Being Done63; -- For More Information -- More Guideline Sources -- Vocabulary Builder -- CH36;Chapter 246; Seeking Guidance -- Overview -- Associations and Hallervorden45;Spatz Disease -- Finding More Associations -- Finding Doctors -- Finding a Neurologist -- Selecting Your Doctor -- Working with Your Doctor -- Broader Health45;Related Resources -- Vocabulary Builder -- PART II58; ADDITIONAL RESOURCES AND ADVANCED MATERIAL -- CH36;Chapter 346; Studies on Hallervorden45;Spatz Disease -- Overview -- Federally45;Funded Research on Hallervorden45;Spatz Disease -- The National Library of Medicine58; PubMed -- Vocabulary Builder -- CH36;Chapter 446; Books on Hallervorden45;Spatz Disease -- Overview -- Book Summaries58; Online Booksellers -- The National Library of Medicine Book Index -- Chapters on Hallervorden45;Spatz Disease -- General Home References -- Vocabulary Builder -- CH36;Chapter 546; Multimedia on Hallervorden45;Spatz Disease -- Overview -- Bibliography58; Multimedia on Hallervorden45;Spatz Disease -- Vocabulary Builder -- CH36;Chapter 646; Physician Guidelines and Databases -- Overview -- NIH Guidelines -- NIH Databases -- Other Commercial Databases -- The Genome Project and Hallervorden45;Spatz Disease -- Specialized References -- Vocabulary Builder -- PART III46; APPENDICES -- Appendix A46; Researching Your Medications -- Overview -- Your Medications58; The Basics -- Learning More about Your Medications -- Commercial Databases -- Contraindications and Interactions 40;Hidden Dangers41; -- A Final Warning -- General References -- Appendix B46; Researching Nutrition -- Overview -- Food and Nutrition58; General Principles -- Finding Studies on Hallervorden45;Spatz Disease -- Federal Resources on Nutrition -- Additional Web Resources -- Vocabulary Builder -- Appendix C46; Finding Medical Libraries -- Overview -- Preparation -- Finding a Local Medical Library -- Medical Libraries Open to the Public -- Appendix D46; Your Rights and Insurance -- Overview -- Your Rights as a Patient -- Patient Responsibilities -- Choosing an Insurance Plan -- Medicare and Medicaid -- NORDs Medication Assistance Programs -- Additional Resources -- Vocabulary Builder -- ONLINE GLOSSARIES -- Online Dictionary Directories -- HALLERVORDEN45;SPATZ DISEASE GLOSSARY -- General Dictionaries and Glossaries -- IDX36;INDEX -- Last Page.
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| Abstract
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This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to hallervorden-spatz disease (also Hallervorden-Spatz Syndrome; late infantile neuroaxonal dystrophy; Neuroaxonal Dystrophy, Late Infantile; Pigmentary Degeneration of Globus Pallidus, Substantia Nigra, Red Nucleus; pigmentary pallidal degeneration syndrome; Progressive Pallid.
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| Dewey Classification
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616.83
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| LC Classification
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HF1008
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| Added Entry
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Parker, James N.
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Parker, Philip M.
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