The Anticipatory Politics of Sickle Cell Disease:

منو

" The Anticipatory Politics of Sickle Cell Disease: "
Jae, Gina Sharp, Lesley

Document Type	:	Latin Dissertation
Language of Document	:	English
Record Number	:	1113614
Doc. No	:	TLpq2363244585
Main Entry	:	Jae, Gina
	:	Sharp, Lesley
Title & Author	:	The Anticipatory Politics of Sickle Cell Disease:\ Jae, GinaSharp, Lesley
College	:	Columbia University
Date	:	2020
student score	:	2020
Degree	:	Ph.D.
Page No	:	241
Abstract	:	Sickle cell disease (Fr: la drépanocytose) is an inherited blood disorder with over a century of biomedical history in the United States. In turn, with recent decades of migration, it has become the most common genetic disease in France. For those with sickle cell disease who also live in high-income countries, the past fifty years have transformed a fatal disease of childhood into a chronic, but still life-shortening condition. In countries like the U.S. and France, where sickle cell disease also disproportionately affects disadvantaged minorities and immigrants, scientific and clinical knowledge production around sickle cell disease has become entwined with race- and class-based history and politics. This research offers ethnographic understandings of how families and health care providers are negotiating the available options to treat sickle cell disease, including the high-risk undertaking of hematopoietic cell transplantation, in a moment when most children in high-income settings are expected to reach adulthood.
Subject	:	Anticipation
	:	Care
	:	La drépanocytose
	:	Medical anthropology
	:	Politics
	:	Sickle cell disease