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" Comparison of Patient Reported and Caregiver Reported Swallowing-Related Quality-of-Life in Parkinson’s Disease "
Zimmerman, Allie S.
Garand, Kendrea
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Latin Dissertation
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| Language of Document
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English
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| Record Number
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1113904
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| Doc. No
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TLpq2394935085
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| Main Entry
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Garand, Kendrea
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Zimmerman, Allie S.
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| Title & Author
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Comparison of Patient Reported and Caregiver Reported Swallowing-Related Quality-of-Life in Parkinson’s Disease\ Zimmerman, Allie S.Garand, Kendrea
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| College
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University of South Alabama
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| Date
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2020
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| student score
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2020
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| Degree
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M.S.
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| Page No
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97
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| Abstract
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This study compared swallowing-related quality-of-life scores reported between 36 patients with Parkinson’s disease (PD) and their caregivers. Further, this study explored potential factors influencing differences between patient and caregiver paired scores, including age, employment status, sex, ethnicity and race, previous history of swallowing evaluation or treatment, caregiver concern about patient cognition, caregiver burden, and time since onset of disease. All study participants were administered an online survey consisting of background and demographic questions and the Swallowing Quality of Life Questionnaire (SWAL-QOL). In agreement with previous studies, a statistically significant difference was not observed between how patients and caregivers reported swallowing-related quality-of-life in patients with PD. The caregiver’s concern about cognition, prior history of swallowing evaluation of treatment, and disease severity were found be most related to patient-reported swallowing-related quality-of-life. The caregiver’s concern about cognition, caregiver burden, and level of care provided proved to be most related to caregiver-reported swallowing-related quality-of-life. However, after adjusting for multiple comparisons, the only statistically significant influential factor found was caregiver burden. These results support the need for appropriate assessment and management of caregiver burden for caregivers of patients with PD.
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| Subject
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Caregiver burden
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Dysphagia
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Parkinson's disease
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Quality-of-life
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Swallowing
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SWAL-QOL
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