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Document Type:Latin Dissertation
Language of Document:English
Record Number:52414
Doc. No:TL22368
Call number:‭3310344‬
Main Entry:Nadine M. Linendoll
Title & Author:Family caregivers' perceived symptom distress of persons with a primary malignant brain tumorNadine M. Linendoll
College:Boston College
Date:2008
Degree:Ph.D.
student score:2008
Page No:141-n/a
Abstract:The diagnosis of a primary malignant brain tumor (PMBT) can be devastating for individuals and their families due to the limited treatment options and poor prognosis. Patients often rely on family members to manage their care; however, many caregivers feel under-prepared and overwhelmed by the experience. Though caring for a person with a PMBT is challenging and complex, little research has addressed the family caregiver's performance. The purpose of this study was to identify the extent to which preparedness and caregiver role strain explained the family caregiver's performance in symptom management. An adapted theoretical framework, The Theory of Unpleasant Symptoms for Family Caregivers, guided this study. The study employed a descriptive, correlational research design in which the researcher obtained cross-sectional data during one collection period. The participants were adults who identified themselves as family caregivers of persons with a PMBT. Forty caregivers were enrolled in the study at the Brain Tumor Center at Beth Israel Deaconess Medical Center. Results from the regression analyses indicated that caregiver role strain and preparedness explained 31% of the variance (adjusted R2 ) in perceived psychological symptom distress and 29% (adjusted R2 ) of the variance in perceived physical symptom distress. Caregiver role strain was the major contributor to psychological (B =.68, p=.000) and physical symptoms (B =.48, p=0.001), indicating that higher levels of caregiver role strain were predictive of higher levels of perceived symptom distress and this relationship was strong. Preparedness contributed less to the explained variance in psychological (B =-.24, p=.20) and physical symptoms (B =-.21, p=.14). The negative beta indicates that higher preparedness was related to lower perceived symptom distress, but this relationship was small when compared with role strain. This study informs clinicians in neuro-oncology that care giver role strain is often high in family caregivers of patients with a PMBT and can have a negative impact on caregiver performance. These findings also support the need for more tailored nursing interventions to assist caregivers with ways to decrease caregiver role strain and improve caregiver preparedness.
Subject:Health and environmental sciences; Biological sciences; Caregiver; Brain tumor; Oncology; Symptom; Strain; Family caregivers; Neurology; Nursing; Brain; Tumors; 0317:Neurology; 0992:Oncology; 0569:Nursing
Added Entry:E. Mahoney
Added Entry:Boston College