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" Autism Spectrum Disorder in Dubai, United Arab Emirates: Problems in access to comprehensive care "
Pooja Mohan
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Latin Dissertation
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| Language of Document
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English
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| Record Number
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53075
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| Doc. No
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TL23029
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| Call number
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1466482
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| Main Entry
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Pooja Mohan
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| Title & Author
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Autism Spectrum Disorder in Dubai, United Arab Emirates: Problems in access to comprehensive care\ Pooja Mohan
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| College
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Sarah Lawrence College
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| Date
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2009
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| Degree
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M.S.
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| student score
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2009
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| Page No
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58
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| Abstract
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The purpose of this study was to examine the role of genetic services as part of interdisciplinary care required for children with Autism Spectrum Disorders (ASDs). Information was elicited from parents and health care providers involved in the care of children with ASDs. Parents were asked information regarding their child's diagnosis and the receipt of professional services. This includes the diagnosing professional, resources provided, possible support group involvement and possible clinical genetics evaluation. Questions were also asked to determine the comfort level parents had in receiving information regarding genetics, inheritance and support from a genetic counselor. Finally, we surveyed parents' opinions about the availability, quality, uptake and needs of genetic services in Dubai. The study showed that none of parents had received a genetics referral or consultation and majority had never received any recurrence risk information. Parents of children with ASDs in this study had concerns about the accessibility of services, combined with the inconvenience of travelling to various locations and high costs of care. Health care providers were asked their views about the need for genetics education, counseling, new born screening, genetic testing and termination. Specific questions were directed towards autism related services, however, broader questions were also asked to determine the providers' beliefs about the availability of general paediatric genetic services to affected families, including their perception of the goals, challenges and barriers to adequate genetic counseling in Dubai. Health care providers surveyed believed in the need for genetic counseling services, however, most felt that there was a lack of adequate services available to families in the region. Responses were evaluated taking into account the cultural, religious and socioeconomic backdrop of Dubai and suggestions were made to determine an appropriate method of delivering and mainstreaming genetic services to the population.
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| Subject
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Health and environmental sciences; Biological sciences; Genetics; Public health; Health care management; 0769:Health care management; 0573:Public health; 0369:Genetics
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| Added Entry
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Sarah Lawrence College
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