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" Disclosure Dilemmas : "
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BL
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| Record Number
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554846
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| Doc. No
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b383415
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| Main Entry
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Hansjakob Müller
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| Title & Author
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Disclosure Dilemmas : : Ethics of Genetic Prognosis after the 'Right to Know/Not to Know' Debate.
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| Publication Statement
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Florence : Taylor and Francis,, 2009.
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| Series Statement
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Medical law and ethics.
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| Page. NO
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(296 pages).
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| ISBN
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1351943812
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: 9781351943819
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| Contents
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Cover -- Half Title -- Title Page -- Copyright Page -- Table of Contents -- List of Figures and Tables -- Notes on Contributors -- Acknowledgements -- Introduction -- Part 1 Setting the Scene -- 1 The Right to Know and the Right Not to Know -- Ten Years On -- 2 Genetic Counselling: Placing the Room in Context -- 3 Genetic Counselling: Clinical Settings and Constraints -- Part 2 Cases and Issues -- 4 Prevention of Harmful False Diagnosis versus Threat by Disclosure of an Inheritable Disease -- A Medical Case -- 4a Communication Yes, but How -- and What? Commentary to the Case Presented by David Winkler and Philippe Lyrer -- 5 The Need for an Ethics of Kinship: Decision Stories and Patients' Context -- 6 Testing for Susceptibility Genes: A Cautionary Tale -- 7 'If Only I Had (Not) Known That': About Risk-Individualization, Chance-Specification and the Loss of Certainty of Not-Knowing -- 8 The Symbolic Fallout of Gene Talk: Replacing the Person with Manageable Constructs -- 9 Predictive Genetic Testing of Adolescents at Risk of Inherited Arrhythmic Death -- Part 3 Responsibilities -- 10 How Legal Frameworks Construct Patterns of Liability in Genetic Counselling: An International Perspective -- 11 Responsibility Towards Relatives -- 12 Careful Communication of 'Bad News': The Cancer Experience -- 13 The Responsibility of the Truth-Teller -- 14 Practising Informed Choice: Decision Making and Prenatal Risk Assessment -- The Danish Experience -- 15 Receiving and Interpreting Information: A Joint Enterprise -- 16 Without Disclosure, No Informed Choice -- 17 Allowing Agency: An Ethical Model for Communicating Personal Genetic Information -- Conclusions -- Index.
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| Subject
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Electronic books
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| Added Entry
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Christoph Rehmann-Sutter
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