| Document Type
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BL
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| Record Number
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600279
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| Doc. No
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b429498
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| Main Entry
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Ebeling, Mary F. E.
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| Title & Author
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Healthcare and big data : : digital specters and phantom objects /\ Mary F.E. Ebeling
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| Page. NO
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1 online resource
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| ISBN
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9781137502216
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: 1137502215
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9781137502209
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1137502207
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| Bibliographies/Indexes
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Includes bibliographical references and index
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| Contents
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Dedication; Acknowledgments; Contents; List of Figures ; Chapter 1: Out of Death, a Birth; Phantom Data; A Curious Thing Comes a-Knockin'; My Marketing Baby, Born of Big Data; The Auto-ethnographic Noir; Chapter Descriptions; Notes; References; Chapter 2: The Rise of the Databased Society; An Industry You've Never Heard Of; Where Do the Data Come From?; Who Has Power over Our Data? Data Brokers Are Worse than the NSA; The Databased Society; Notes; References; Chapter 3: Privacy and Data Phantoms; The Biopolitics of Phantom Data; Lively Data and Vaporized Privacy Rights; Notes; References
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Chapter 4: Coercive Consent and Digital Health InformationPatient Privacy and the Elimination of Informational Consent; Networks of Disclosure Under the Three Rules; Privacy and Consent from Below; Coercive Consent in Capitalist Healthcare; Notes; References; Chapter 5: The Biopolitics of Lively Data; The Privacy Promises and Market Values of Anonymization; On the Internet, Everybody Knows You're a Patient; Ownership Defines Us: The "Value-Add" of Anonymization and How Data Ownership Is Claimed; Possession Plus Innovation Equals Ownership; Notes; References
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Chapter 6: The Uncanny Lives of Data CommoditiesComrades; My Body as Data Subject-Object of Biocapital; The Data Commodity Comes to Haunt Me; I Am Not a Baby; The Immaterial Gets "Real"; Notes; References; Chapter 7: The Body of Evidence; Data Paranoia; Experian Owns Us; Empathy and the Violence of "Dumb" Data; Notes; References; Chapter 8: Life After Death; The Uncanny Life of Data; From the Black Box to the Databased Society; The Noir Ending; References; Index
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| Abstract
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This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities--data phantoms--or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these "data phantoms" have for patient privacy as well as the very real harm that they can cause
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| Subject
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Medicine-- Data processing.
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Big data.
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Data mining.
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| Subject
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Information Storage and Retrieval.
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| Dewey Classification
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610.72/4
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| LC Classification
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R852
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| NLM classification
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W 26.55.I4
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| Added Entry
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Ohio Library and Information Network.
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