|
" The ethics of research biobanking "
Jan Helge Solbakk, Søren Holm, Bjørn Hofmann, editors
| Document Type
|
:
|
BL
|
| Record Number
|
:
|
655782
|
| Doc. No
|
:
|
dltt
|
| Title & Author
|
:
|
The ethics of research biobanking\ Jan Helge Solbakk, Søren Holm, Bjørn Hofmann, editors
|
| Publication Statement
|
:
|
Dordrecht ;London :: Springer,, c2009
|
| Page. NO
|
:
|
1 online resource (xviii, 357 p.) :: ill
|
| ISBN
|
:
|
9780387938721 (e-isbn)
|
|
|
:
|
: 0387938729 (e-isbn)
|
|
|
:
|
9780387938714
|
|
|
:
|
0387938710
|
| Bibliographies/Indexes
|
:
|
Includes bibliographical references and index
|
| Contents
|
:
|
Research biobanking : the traditional approach. Consent to biobank research : one size fits all? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- What no one knows cannot hurt you : the limits of informed consent in the emerging world of biobanking / Arthur L. Caplan -- Users and uses of the biopolitics of consent : a study of DNA banks / Pascal Ducournau and Anne Cambon-Thomsen -- Information rights on the edge of ignorance / Anne Maria Skrikerud -- The dubious uniqueness of genetic information / Anne Maria Skrikerud -- Duties and rights of biobank participants : principled autonomy, consent, voluntariness and privacy / Lars Øystein Ursin -- Biobanking and disclosure of research results : addressing the tension between professional boundaries and moral intuition / Lynn G. Dressler -- Biobanks and our common good / Erik Christensen -- Trust, distrust and co-production : the relationship between research biobanks and donors / Pascal Ducournau and Roger Strand -- Scientific citizenship, benefit, and protection in population-based research / Vilh́jalmur Árnason -- Research biobanking : towards a new conceptual approach. Mapping the language of research biobanking : an analogical approach / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- The use of analogical reasoning in umbilical cord blood biobanking / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- The Alexandria plan : creating libraries for human tissue research and therapeutic use / Laurie Zoloth -- The art of biocollections / Anne Hambro Alnæs -- The health dugnard : biobank participation as the solidary pursuit of the common good / Lars Øystein Ursin and Berge Solberg -- Embodied gifting : reflections on the role of information in biobank recruitment / Klaus Hoeyer -- Conscription to biobank research? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- Ownership rights in research biobanks : do we need a new king of 'biological property'? / Paula Lobato de Faria -- Legal challenges and strategies in the regulation of research biobanking / Elisabeth Rynning -- Annexation of life : the biopolitics of industrial biology / Jan Reinert Karlsen and Roger Strand -- In the ruins of Babel : should biobank regulations be harmonized / Jan Reinert Karlsen, Jan Helge Solbak, and Roger Strand
|
| Subject
|
:
|
Bioethics
|
| Subject
|
:
|
Biobanks-- Moral and ethical aspects
|
| Subject
|
:
|
Biological resource centers-- Moral and ethical aspects
|
| Subject
|
:
|
Biological specimens-- Moral and ethical aspects
|
| Subject
|
:
|
Biological Specimen Banks-- ethics
|
| Subject
|
:
|
Bioethical Issues
|
| Subject
|
:
|
Biomedical Research-- ethics
|
| Subject
|
:
|
Informed Consent
|
| Subject
|
:
|
Ownership
|
| Subject
|
:
|
Intellectual Property
|
| Subject
|
:
|
Tissue Donors
|
| Subject
|
:
|
Ethics, Research
|
| Subject
|
:
|
Genetic Research-- ethics
|
| Subject
|
:
|
Tissue and Organ Procurement-- ethics
|
| Subject
|
:
|
Biological Specimen Banks-- legislation jurisprudence
|
| Dewey Classification
|
:
|
174.957
|
| LC Classification
|
:
|
QH441.2.E84 2009eb
|
|
|
:
|
QH441.2.E84 2009eb
|
| Added Entry
|
:
|
Solbakk, Jan Helge
|
|
|
:
|
Holm, Søren,1963-
|
|
|
:
|
Hofmann, Bjørn
|
| |