|
" Ethical issues in governing biobanks : "
edited by Bernice Elger ... [et al.]
| Document Type
|
:
|
BL
|
| Record Number
|
:
|
703739
|
| Doc. No
|
:
|
b525928
|
| Title & Author
|
:
|
Ethical issues in governing biobanks : : global perspectives /\ edited by Bernice Elger ... [et al.]
|
| Publication Statement
|
:
|
Aldershot, England ;Burlington, VT :: Ashgate Pub. Ltd.,, c2008
|
| Page. NO
|
:
|
vi, 257 p. ;; 24 cm
|
| ISBN
|
:
|
0754672557 (hardback : alk. paper)
|
|
|
:
|
: 9780754672555 (hardback : alk. paper)
|
| Bibliographies/Indexes
|
:
|
Includes bibliographical references and index
|
| Contents
|
:
|
Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron
|
| Subject
|
:
|
Human genetics-- Databases-- Law and legislation
|
| Subject
|
:
|
Human genetics-- Databases-- Moral and ethical aspects
|
| Subject
|
:
|
Genome, Human
|
| Subject
|
:
|
Confidentiality
|
| Subject
|
:
|
Databases, Genetic-- ethics
|
| Subject
|
:
|
Databases, Genetic-- legislation jurisprudence
|
| Subject
|
:
|
Genetic Research-- ethics
|
| Subject
|
:
|
Genetics, Population-- ethics
|
| Dewey Classification
|
:
|
174.2
|
| LC Classification
|
:
|
QH438.7.E836 2008
|
| NLM classification
|
:
|
2008 N-818
|
|
|
:
|
QU 470E835 2008
|
| Added Entry
|
:
|
Elger, Bernice S.,1964-
|
| |