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" The ethics and governance of human genetic databases : "
edited by Matti Häyry ... [et al.]
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BL
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| Record Number
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705747
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| Doc. No
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b527936
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| Title & Author
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The ethics and governance of human genetic databases : : European perspectives /\ edited by Matti Häyry ... [et al.]
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| Publication Statement
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Cambridge ;New York :: Cambridge University Press,, 2007
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| Series Statement
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Cambridge law, medicine, and ethics
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| Page. NO
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xi, 283 p. ;; 24 cm
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| ISBN
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0521856620 (hardback)
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: 9780521856621 (hardback)
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| Bibliographies/Indexes
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Includes bibliographical references (p. 257-275) and index
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| Contents
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Introduction : some lessons of ELSAGEN / Vilhjálmur Árnason -- On human genetic databases / Gardar Árnason -- American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- The languages of privacy / Salvör Nordal -- A sociological perspective : public perceptions of privacy and their trust in institutions managing and regulating genetic databases / Kjell E. Eriksson ... [et al.] -- Estonia / Külliki Korts -- Iceland / Margrét Lilja Gudmundsdóttir and Salvör Nordal -- Sweden / Kjell E. Eriksson -- United Kingdom / Sue Weldon -- Public discourses on human genetic databases / Piia Tammpuu -- Regulating human genetic databases in Europe / Jane Kaye -- Consent and population genetic databases : a comparative analysis of the law in Iceland, Sweden, Estonia and the UK / Hördur Helgi Helgason -- Third parties' interests in population genetic databases : some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK / Lotta Wendel -- Transforming principles of biolaw into national legislation : comparison of four national laws in three aspects / Ants Nõmper -- Governance of population genetic databases : a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C. Gibbons -- The legal jigsaw governing population genetic databases : concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Introduction : ethical questions / Vilhjálmur Árnason -- Pursuing equality : questions of social justice and population genomics / Sarah Wilson and Ruth Chadwick -- Benefit-sharing and biobanks / Kadri Simm -- Genetic discrimination / Lena Halldenius -- Privacy / Salvör Nordal -- Trust / Margit Sutrop -- Informed consent and human genetic database research / Sigurdur Kristinsson and Vilhjálmur Árnason -- The impact of biobanks on ethical frameworks / Ruth Chadwick and Mark Cutter -- Genetics, rhetoric and policy / Gardar Árnason -- Genetic databases and governance / Rainer Kattel -- Bioethical analysis of the results : how well do laws and regulations address people's concerns? / Matti Häyry and Tuija Takala
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| Subject
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Human genetics-- Databases-- Moral and ethical aspects
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Biological Specimen Banks-- ethics-- Europe
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Databases, Genetic-- ethics-- Europe
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Genetic Privacy-- Europe
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| Subject
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Genetics, Medical-- ethics-- Europe
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| Dewey Classification
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174.296042
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| LC Classification
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QH438.7.E833 2007
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| NLM classification
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2007 F-888
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QU 23E84 2007
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| Added Entry
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Häyry, Matti
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