| Document Type
|
:
|
BL
|
| Record Number
|
:
|
952954
|
| Doc. No
|
:
|
b707324
|
| Title & Author
|
:
|
Consent, rights and choices in health care for children and young people /\ British Medical Association.
|
| Publication Statement
|
:
|
London :: BMJ Books,, ©2001.
|
| Page. NO
|
:
|
1 online resource (xxix, 266 pages)
|
| ISBN
|
:
|
0585394024
|
|
|
:
|
: 0727912283
|
|
|
:
|
: 9780585394022
|
|
|
:
|
: 9780727912282
|
| Bibliographies/Indexes
|
:
|
Includes bibliographical references and index.
|
| Contents
|
:
|
Intro -- Contents -- List of cases -- List of statutes and regulations -- Membership of the Steering Group -- Editorial Board -- Introduction -- 1: An ethical approach to treating children and young people -- 1.1 Focus of the book: children and young people -- 1.1.1 Decision making in context -- 1.2 Facets of established good practice -- 1.2.1 Summary of good practice -- 1.3 Recognising minors' rights -- 1.3.1 Minors' rights in the context of parental autonomy -- 1.3.2 Ethical and practical considerations -- 1.3.3 Why assessment of minors' rights can be complex -- 1.3.4 Equity, non-discrimination and other important rights -- 1.3.5 Health workers as patient advocates -- 1.3.6 Summary of minors' basic health rights -- 1.4 Consent to and refusal of treatment -- 1.4.1 Why we value patient consent -- 1.4.2 When can patients refuse treatment? -- 1.4.3 Why are mature children and young people treated differently from adults? -- 1.4.4 Exceptionally grave decisions -- 1.4.5 The welfare of the child -- 1.5 Criteria for valid decision making -- 1.5.1 Weighing "benefits" and "burdens" -- 1.6 Involving minors in health care decisions -- 1.6.1 When should minors be protected from decision making? -- 1.7 Summary -- 2: The law on children, consent and medical treatment: England, Wales and Northern Ireland -- 2.1 When treatment can be given -- 2.2 Consent from competent young people -- 2.2.1 Limits on young people's rights to choose -- 2.2.2 A statutory right to refuse -- 2.2.3 Comment on the law -- 2.3 Consent from parents and people with parental responsibility -- 2.3.1 Parental responsibility -- 2.3.2 Limits on parental rights -- 2.4 Consent from carers -- 2.5 Consent from the courts -- 2.5.1 Mechanisms for court involvement -- 2.5.2 Welfare and proportionality -- 2.5.3 When to go to court -- 2.6 Summary.
|
|
|
:
|
10.1 School health services -- 10.2 Confidentiality -- 10.2.1 Inspection and monitoring of standards -- 10.2.2 Disclosure of information to schools -- 10.3 Consent -- 10.3.1 Consent to school medical examinations -- 10.3.2 Implied consent for immunisation -- 10.4 Medicines -- 10.5 Drug misuse -- 10.6 Summary -- 11: Summary of good practice -- 11.1 Decision making, information sharing, the child and the family -- 11.1.1 Involving children and young people in decision making -- 11.1.2 Provision of information and truth-telling -- 11.1.3 Children's refusal of information -- 11.1.4 Consent to treatment -- 11.1.5 Involving families -- 11.1.6 Parental responsibility -- 11.1.7 Emergencies -- 11.2 Competence and maturity in children and young people -- 11.2.1 Age and "maturity" -- 11.2.2 Competence -- 11.3 Promoting benefit, avoiding harm: the "best interests" criterion -- 11.3.1 Best interests -- 11.3.2 Benefit and harm -- 11.4 Circumstances where dilemmas arise -- 11.4.1 Disputes -- 11.4.2 A child's refusal of treatment -- 11.4.3 The parents' role -- 11.4.4 Parental insistence on active treatment -- 11.4.5 The courts as final arbiter -- 11.4.6 Distinction between authority to treat and obligation to treat -- 11.5 Withdrawing and withholding treatment -- 11.5.1 Disagreements about when to cease treatment -- 11.6 Confidentiality and control of information -- 11.6.1 Children's confidentiality -- 11.6.2 Confidentiality of other family members -- 11.6.3 Access to health records -- 11.6.4 Access to information by schools -- 11.7 Mental disorder -- 11.8 Research and sensitive or innovative procedures -- 11.8.1 Informed consent -- 11.8.2 Treatment to benefit other people -- 11.8.3 Audit of new procedures -- 11.8.4 Research -- 11.9 Further advice -- Appendix 1 -- Examination or assessment for child protection purposes -- Appendix 2 -- Useful addresses -- Index -- A.
|
|
|
:
|
3: The law on children, consent and medical treatment: Scotland -- 3.1 When treatment can be given -- 3.2 Consent from competent young people -- 3.2.1 Competence -- 3.2.2 Confidentiality -- 3.2.3 People over 16 -- 3.2.4 Refusal by competent young people -- 3.2.5 A statutory right to refuse -- 3.2.6 Comment on the law -- 3.3 Consent from parents and people with parental responsibility -- 3.3.1 Parental responsibilities -- 3.3.2 Limits on parental rights -- 3.4 Consent from carers -- 3.5 Consent from the courts and children's hearings -- 3.5.1 Mechanisms for involvement -- 3.5.2 Limits on the powers of courts and children's hearings -- 3.5.3 When to go to court -- 3.6 Summary -- 4: Confidentiality -- 4.1 Patients' rights to confidentiality -- 4.1.1 Deceased patients -- 4.1.2 Limits on confidentiality -- 4.1.3 Involving parents -- 4.2 Health records -- 4.2.1 Definition of health record -- 4.2.2 Access to records -- 4.3 Circumstances in which confidentiality may need to be breached -- 4.3.1 Confidentiality and suspected abuse -- 4.3.2 Child protection case conferences -- 4.4 Use of health information for purposes other than health care -- 4.4.1 Teaching, audit and research -- 4.5 Visual and audio recordings -- 4.5.1 Media and publicity -- 4.6 Summary -- 5: Involving children and assessing a child's competence -- 5.1 Defining competence -- 5.1.1 Coercion and undue influence -- 5.1.2 The functional nature of competence -- 5.2 A practical approach to assessing competence -- 5.3 Growth in level of understanding -- 5.4 Factors affecting competence -- 5.4.1 The role of information -- 5.5 Enhancing competence -- 5.6 Summary -- 6: Refusal of treatment and decisions not to treat -- 6.1 Refusal of treatment -- 6.1.1 Refusal by parents -- 6.1.2 Refusal by competent young people -- 6.1.3 Refusal of blood products -- 6.1.4 Providing treatment when the patient refuses.
|
|
|
:
|
6.2 Withdrawing and withholding treatment -- 6.2.1 Withdrawing and withholding life-prolonging medical treatment -- 6.2.2 Clinical factors -- 6.2.3 Ethical factors -- 6.2.4 Legal factors -- 6.2.5 Once a decision has been made -- 6.3 Summary -- 6.3.1 Refusal of treatment -- 6.3.2 Withdrawing and withholding treatment -- 7: Mental health care of children and young people -- 7.1 Good practice -- 7.1.1 The relevance of general ethical principles -- 7.1.2 Establishing trust -- 7.2 The patient population under consideration -- 7.2.1 Risk of social stigma -- 7.2.2 Confidentiality -- 7.3 Consent and refusal of mental health care -- 7.4 Overlapping legal frameworks for authorising mental health care -- 7.4.1 Treatment within the Mental Health Act or outside it: which is best? -- 7.4.2 Advantages and drawbacks: the Children Act -- 7.4.3 Advantages and drawbacks: the Mental Health Act -- 7.5 Practical aspects of mental health care -- 7.6 Safeguards for particular medical treatments -- 7.6.1 Drug treatments -- 7.6.2 Electroconvulsive therapy (ECT) -- 7.7 Timely access to services -- 7.8 Appeals and complaints -- 7.9 Summary -- 8: Sensitive or controversial procedures -- 8.1 General ethical issues -- 8.1.1 Balance and proportionality -- 8.1.2 Avoiding harm -- 8.1.3 Confidentiality and shared decision making -- 8.2 Live donation of organs and tissue -- 8.2.1 Assessing "benefit" and "best interests" -- 8.2.2 Bone marrow and regenerative tissue -- 8.2.3 Non-regenerative tissue donation -- 8.2.4 Seeking consent: competent minors -- 8.2.5 Parental consent -- 8.2.6 The need for dispassionate assessment of risk and benefit -- 8.3 Contraception, sterilisation, abortion and sexually transmitted disease -- 8.3.1 Contraception -- 8.3.2 Advisory role of health professionals -- 8.3.3 Young people with learning difficulties -- 8.3.4 Contraceptive sterilisation.
|
|
|
:
|
8.3.5 Surgical responses to menorrhagia -- 8.3.6 Abortion -- 8.3.7 Treatment for sexually transmitted disease -- 8.4 Genetic testing -- 8.4.1 Carrier testing -- 8.4.2 Predictive testing for late onset disorders -- 8.5 Sensitive or controversial procedures required for legal reasons -- 8.5.1 Paternity testing -- 8.5.2 Assessment of age -- 8.5.3 Assessment in the case of alleged abuse -- 8.5.4 Use of covert surveillance -- 8.6 Ensuring best practice -- 8.7 Summary -- 9: Research and innovative treatment -- 9.1 Ethical issues in research -- 9.1.1 Who decides? -- 9.1.2 "Therapeutic" and "non-therapeutic" -- 9.1.3 Concerns for vulnerable participants -- 9.1.4 The ethical basis for research -- 9.1.5 Guidelines on research involving children -- 9.1.6 Benefits and burdens -- 9.1.7 Confidentiality -- 9.2 Types of research -- 9.2.1 Records-based research -- 9.2.2 Research involving healthy children -- 9.2.3 Research involving sick children -- 9.2.4 Psychiatric research -- 9.2.5 Genetic research -- 9.2.6 Psychosocial research -- 9.2.7 Research involving human material -- 9.3 Consent and refusal -- 9.3.1 Competent children and young people -- 9.3.2 Incompetent minors/parental consent -- 9.3.3 Legal aspects of parental consent -- 9.4 Safeguards -- 9.4.1 Governance and monitoring of research -- 9.4.2 Continuing review -- 9.4.3 Reporting and investigating adverse incidents -- 9.4.4 Children's safety in relation to researchers -- 9.5 The boundary between treatment and research -- 9.6 Innovative treatment -- 9.6.1 The duty of candour -- 9.6.2 The value of a second opinion -- 9.6.3 The concept of "acceptable risk" -- 9.6.4 Surveillance of outcomes -- 9.6.5 The medical duty to act only within one's sphere of competence -- 9.7 Summary -- 9.7.1 Summary of guidance on paediatric research -- 9.7.2 Summary of innovative treatment -- 10: Health care in schools.
|
| Abstract
|
:
|
This books gives guidance for doctors and other health professionals who are involved in providing health care for children and young people.The books sets out best practice guidance, and explains that children and young people should be allowed to participate in decisions about their health care to the extent they wish. It explains who can give consent to treatment on behalf of a person under 18 and when children and young people can seek health care and advice independently.It also explores the issue of refusal of treatment; what parents are entitled to refuse on behalf of their young children, and what to do if young people refuse treatment.A comprehensive summary of chapters provides quick reference for the key ethical and legal issues.
|
| Subject
|
:
|
Child health services-- Law and legislation-- Great Britain.
|
| Subject
|
:
|
Children-- Health and hygiene-- Great Britain.
|
| Subject
|
:
|
Children-- Hospital care-- Great Britain.
|
| Subject
|
:
|
Children-- Legal status, laws, etc.-- Great Britain.
|
| Subject
|
:
|
Child health services-- Law and legislation.
|
| Subject
|
:
|
Children-- Health and hygiene.
|
| Subject
|
:
|
Children-- Hospital care.
|
| Subject
|
:
|
Children-- Legal status, laws, etc.
|
| Subject
|
:
|
LAW-- Administrative Law Regulatory Practice.
|
| Subject
|
:
|
Child Health Services-- legislation jurisprudence.
|
| Subject
|
:
|
Informed Consent-- legislation jurisprudence.
|
| Subject
|
:
|
Minors.
|
| Subject
|
:
|
Adolescent.
|
| Subject
|
:
|
Child Welfare-- legislation jurisprudence.
|
| Subject
|
:
|
Child.
|
| Subject
|
:
|
Confidentiality.
|
| Subject
|
:
|
Ethics, Medical.
|
| Subject
|
:
|
Human Experimentation.
|
| Subject
|
:
|
Mental Competency.
|
| Subject
|
:
|
Mental Health Services-- legislation jurisprudence.
|
| Subject
|
:
|
School Health Services.
|
| Subject
|
:
|
Therapies, Investigational.
|
| Subject
|
:
|
Tissue and Organ Procurement.
|
| Subject
|
:
|
Treatment Refusal.
|
| Subject
|
:
|
Withholding Treatment.
|
| Subject
|
:
|
United Kingdom.
|
| Subject
|
:
|
Great Britain.
|
| Dewey Classification
|
:
|
362.1/083/0941
|
| LC Classification
|
:
|
RJ242.C66 2001eb
|
| NLM classification
|
:
|
WA 33 FA1C755 2001
|
| Added Entry
|
:
|
British Medical Association.
|