| Document Type
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BL
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| Record Number
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974226
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| Doc. No
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b728596
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| Title & Author
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The official parent's sourcebook on Klippel-Feil syndrome /\ James N. Parker and Philip M. Parker, editors.
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| Publication Statement
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San Diego, Calif. :: Icon Health Publications,, ©2002.
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| Page. NO
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1 online resource (viii, 76 pages)
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| ISBN
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0585446091
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: 9780585446097
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| Bibliographies/Indexes
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Includes bibliographical references and index.
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| Contents
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Introduction -- Overview -- Organization -- Scope -- Moving Forward -- PART I: THE ESSENTIALS -- Chapter 1. The Essentials on Klippel-Feil Syndrome: Guidelin -- Overview -- What Is Klippel-Feil Syndrome? -- Is There Any Treatment? -- What Is the Prognosis? -- What Research Is Being Done? -- For More Information -- More Guideline Sources -- Vocabulary Builder -- Chapter 2. Seeking Guidance -- Overview -- Associations and Klippel-Feil Syndrome -- Finding More Associations -- Finding Doctors -- Finding a Neurologist -- Selecting Your Doctor -- Working with Your Child's Doctor.
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Appendix A. Researching Your Child's Medications -- Overview -- Your Child's Medications: The Basics -- Learning More about Your Child's Medications -- Commercial Databases -- Contraindications and Interactions (Hidden Dangers) -- A Final Warning -- General References -- Appendix B. Finding Medical Libraries -- Overview -- Preparation -- Finding a Local Medical Library -- Medical Libraries Open to the Public -- Appendix C. Your Child's Rights and Insurance -- Overview -- Your Child's Rights as a Patient -- Parent Responsibilities -- Choosing an Insurance Plan -- Medicaid.
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Broader Health-Related Resources -- Vocabulary Builder -- PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL -- Chapter 3. Studies on Klippel-Feil Syndrome -- Overview -- Federally-Funded Research on Klippel-Feil Syndrome -- E-Journals: PubMed Central -- The National Library of Medicine: PubMed -- Vocabulary Builder -- Chapter 4. Books on Klippel-Feil Syndrome -- Overview -- Book Summaries: Online Booksellers -- The National Library of Medicine Book Index -- Chapters on Klippel-Feil Syndrome -- General Home References -- Vocabulary Builder -- PART III. APPENDICES.
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NORD's Medication Assistance Programs -- Additional Resources -- Vocabulary Builder -- ONLINE GLOSSARIES -- Online Dictionary Directories -- KLIPPEL-FEIL SYNDROME GLOSSARY -- General Dictionaries and Glossaries -- INDEX.
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| Abstract
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This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to klippel-feil syndrome (also Cervical Vertebral Fusion; Congenital Cervical Synostosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, govern.
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| Subject
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Cervical vertebrae-- Diseases, Bibliography.
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| Subject
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Cervical vertebrae-- Diseases, Popular works.
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| Subject
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Cervical vertebrae-- Diseases.
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| Subject
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MEDICAL-- Surgery-- General.
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| Dewey Classification
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617.5/3
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| LC Classification
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RC936.O34 2002eb
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| Added Entry
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Parker, James N.,1961-
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Parker, Philip M.,1960-
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| Added Entry
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Icon Group International, Inc.
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